Wednesday, January 21 - Saturday, January 24

The week flew by rather chaotically. With Andrew in Brazil I had to manage the crazy mornings of trying to get the car out of the driveway so the workers could park there, but also then arrange with the street crew who are tearing up the street right in front of our house, prohibiting parking on our block, then get the kids to school, then park again, then go to work. 

There was also a winter storm to prepare for. We have a generator and lots of food, so I went out Thursday just to get some milk and jugs of water. 

The insurance approval process continues with a denial of the appeal. Now it goes to a peer-to-peer stage where my doctor has to present evidence and argument to justify giving me this drug. From what I've read in the LGSOC group I belong to on Facebook, some doctors won't even go through this process. So I'm lucky that my care team is doing everything they can to make this happen, but it's still extremely frustrating and nerve-wracking.

Andrew got home Friday afternoon, and he remembered that the symphony tickets we'd been unable to use in November had been changed to Friday. It was bitter cold, but we went ahead and went. We even got another ticket for Greta, who was happy to join us since Lucia was babysitting all evening. The house is pretty creepy right now, with tarps flapping and cold air rushing in from the dark, uninsulated empty space. I wouldn't have wanted to stay home alone either.